The National Alliance of Childhood Cancer Parent Organisations (NACCPO) was founded in 1999 at a meeting called by Prof. Mike Stevens, then a Paediatric Oncologist at Birmingham Children’s Hospital. Prof. Stevens was a great supporter of parent involvement and the International Confederation of Childhood Cancer Parent Organisations (ICCCPO).
Prof. Stevens organised the first formal meeting to address the lack of a national parent group and minimal input in children’s and parents issues internationally, He worked with Geoff Thaxter of the Lisa Thaxter Trust (LTT), which became a founding member of NACCPO. Geoff was a driving force throughout our first ten years.
The other founding members were: Candlelighters, Forget Me Not Trust, Retinoblastoma Society (now the Childhood Eye Cancer Trust), CHICS, PASIC, COPARS and SPoCC and ROHBoTS.
The first meeting focused on need for a national voice to address issues such as insurance and employment for survivors. Other early meetings focused on recruiting other groups and encouraging parents to form groups in treatment centres where none existed.
NACCPO joined ICCCPO in 2002 and Geoff Thaxter volunteered to be our ICCCPO representative. Until he passed away in August 2008, Geoff continued to work tirelessly for both NACCPO and ICCCPO. We owe him
a great debt of gratitude and miss his input greatly.
Membership gradually increased, and we began fielding parent representatives to various research projects and committe6es. In 2004, we recruited a part-time Operations Manager to oversee all these activities.
On winding up activities in 2010, the Lisa Thaxter Trust made a significant donation from residual funds, which enables us to continue Geoff’s national and international vision to improve care for our country’s children.
In 2010, we decided to rebrand. Though our name has changed to Childhood Cancer Parents Alliance, we retain our original ethos, working together for children and young people with cancer and their families.
We continue to work closely with SIOP Europe, World Child Cancer and ICCCPO parent groups to improve research, treatment and services for children with cancer no matter where in the World they live.